Spina Bifida

Spina Bifida is a condition where the baby’s spine does not develop properly in the womb causing incomplete development of the brain, the spinal cord, and protective coverings.

The name Spina Bifida means ‘Split Spine’. It is a developmental condition, and the cause remains unknown. A risk factor to be aware of is a lack of folic acid during early pregnancy; it is recommended to take supplements. Open spina bifida is when the spinal canal is open along the vertebrae causing a visible lesion on the lower or middle back. It is normally detected during pregnancy. A pediatric neurosurgeon will usually see the baby shortly after birth to treat the lesion. Closed spinal lesions are not always detected until later in life. Life with spina bifida varies significantly between individuals. The bowel and bladder are often affected, some may need or prefer a wheelchair, and reduced skin sensation can lead to sores and injuries. There are a few related conditions, such as hydrocephalus, which will further impact a person’s life.

See below for links to two leading UK charities for people with Spina Bifida as well as some informative resources on its related conditions.

• Shine Charity
• Spina Bifida Association
• Spina Bifida NHS

Related Conditions:

• Anencephaly - Shine
• Chiari Malformation NHS
• Hydrocephalus NHS
• Tethered Cord Syndrome - Shine