Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

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WHAT IS ME/CFS?

WHAT IS ME/CFS?

1.A short introduction explaining ME/CFS file  Introduction to ME-CFS.pdf [pdf] 461KB

2. Getting started with ME/CFS  GETTING STARTED for CFS pts 2nd Section.pdf [pdf] 418KB

3. A detailed biological explanation of ME/CFS  BACME-An-Introduction-to-Dysregulation-in-MECFS-1 (1).pdf [pdf] 777KB

4. A comprehensive ME/CFS Service leaflet on understanding ME/CFS  Understanding ME CFS Getting started updated copy August 2023 (1).pdf [pdf] 838KB

5. What we offer  What we offer.pdf [pdf] 490KB

Energy management

Energy management

1. Pacing and grading activity file  Activity Management- Pacing and Grading Activity.pdf [pdf] 710KB

2. How to complete and calculate an activity diary (with template)  How to complete an Activity Diary v1.pdf [pdf] 677KB

3. Weekly planner template  Weekly Planner (w) 2020.pdf [pdf] 217KB

4. Planning and baselines  Planning and Baselines (w) 2020.pdf [pdf] 586KB

5. Rest  What is Rest (W).pdf [pdf] 303KB

6. Sleep handout  Sleep.leaflet.2.pdf [pdf] 791KB

7. Value based goal setting  Value based goals and goal setting 2009 (w).pdf [pdf] 416KB

8. Relapse management  Relapse & resource list.pdf [pdf] 622KB

9. Pacing up  Pacing Up.pdf [pdf] 499KB

Energy conservation

Energy conservation

The following links contain energy conservation tips for a variety of daily tasks:

  1. Energy Conservation at Work.pdf 311KB
  2. Energy Conservation in Cleaning .pdf 515KB
  3. Energy Conservation in Gardening .pdf 446KB
  4. Energy Conservation in Infant Care pdf 427KB
  5. Energy Conservation in Laundry pdf 415KB
  6. Energy Conservation in Meal Preparation pdf 267KB
  7. Energy Conservation in Personal Care pdf483KB
  8. Energy Conservation in Shopping pdf 413KB
  9. Fatigue Management - energy conservation techniques.pdf 704KB
Relaxation

Relaxation

1. Introduction to relaxation  Introduction to relaxation.pdf [pdf] 567KB

2. Relaxation leaflet  Relaxation leaflet 5th.pdf [pdf] 568KB

3. Breathing exercises 1  Breathing and Relaxation Links.pdf [pdf] 102KB

4. Breathing exercises 2  Breathing Techniques for CFS Symptom Control.pdf [pdf] 513KB

Coping with the emotional impact of ME/CFS

Coping with the emotional impact of ME/CFS

1. Local psychological support services  Local services contact sheet - AKH.pdf [pdf] 433KB

2. Mindfulness  Mind Mindfulness Booklet.pdf [pdf] 466KB

3. Obstacles to making changes  Obstacles to making changes.pdf [pdf] 464KB

4. Self-compassion  Self compassion and ME.pdf [pdf] 412KB

Healthy eating

Healthy eating

1. Diet  Diet.pdf [pdf] 619KB
2 Nausea advice sheet Nausea general advice on diet.pdf [pdf] 594KB
3. Nutrition Nutrition.pdf [pdf] 281KB

Useful links

Useful links

1. Post-viral fatigue: a guide to management  BACME Post Viral Fatigue A Guide to Management May2020.pdf [pdf] 681KB

2. Flu jab advice  Flu jab advice ME CFS.pdf [pdf] 292KB

3. ME/CFS Awareness  ME Awareness Booklet.pdf [pdf] 719KB

4. Memory and Concentration  Memory & Concentration.pdf [pdf] 370KB

5. Travel tips  Travel recommendations KW.pdf [pdf] 402KB

6. Resources  Additional Resources for FSS and Web 2020.pdf [pdf] 529KB

7. Advice for students  Advice for Students with CFS.pdf [pdf] 274KB

8. Pregnancy  ME _ pregnancy.pdf [pdf] 152KB

9. Work resources  Work Resources & links.pdf [pdf] 462KB

Useful organisations

Useful organisations

1. NICE guidelines  myalgic-encephalomyelitis-or-encephalopathychronic-fatigue-syndrome-diagnosis-and-management-pdf-66143718094021.pdf [pdf] 539KB

2. ME/CFS Helplines file  ME CFS Helplines.pdf [pdf] 563KB

3. Talking therapies in Surrey file  Surrey-IAPT.pdf [pdf] 17MB

4. British Association of Clinicians in ME/CFS https://bacme.info/

Communication

Communication

  1. employers-guide-to-me-booklet-2016.pdf [pdf] 665KB
  2. How to tell your child 2022.pdf [pdf] 592KB
  3. Information for relatives and carers.pdf [pdf] 589KB
  4. MECFS-and-higher-education-sep-2020.pdf [pdf] 611KB

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Healthy Workplace Achievement Award 2016 NHS Choices